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SIGN UP FOR A FREE FSHD DIAGNOSTIC TEST
tải xuống
Registration form
Date of birth

🔒 SECURITY & COSTS                           

* Completely freewhole process

(including kit and test)

* Only published when availablePatient consent. 

* Absolute confidentialityPersonal information and test results.

Facial–shoulder–arm dystrophy (FSHD)is a genetic disease that progresses slowlyDiagnosis determined by genetic testingplays a very important role in early detection and disease management.


Early diagnosis with genetic testing helps:

  • Accurately identify FSHD
  • Avoid misdiagnosis with other muscle diseases
  • Plan appropriate monitoring and treatment
  • Support genetic counseling for families

When you or a loved one has signs and symptoms of FSHD

👉 You should registerFSHD genetic testingas soon as possible.


🔬 TESTING METHOD

  • UseSaliva sample– non-invasive, easy to do at home
  • In-depth genetic analysis to detect related abnormalitiesFSHD1 or FSHD2
  • Samples were processed at the FSHD Research Center - Dr. JONES' Lab - University of Nevada, USA.

📦 REGISTRATION & TESTING PROCESS

  1. Contact FSHD Vietnam Consulting - Support Group
    → Receive detailed instructions on testing procedures and registration
  2. Provide clinical symptom information
    → Includes manifestations of muscle weakness, time of onset, and family history
  3. Receive and use the saliva sample collection kit
    → Follow standard instructions to ensure sample quality
  4. Submit patient samples
    → Saliva samples are sent for testing atFSHD Intensive Research Center Dr. Jones Lab (affiliated with the University of Nevada, Reno city, USA).
  5. Gene analysis & results return
    → Estimated time:about 5-6 weeks

MyFSHD UNITED STATES

Dr. Research Center Jones Lab

Address: University of Nevada, Reno, Nevada, United States

Website: myfshd.org

FSHD VIETNAM

Ms. Flower

0768291089

nguyenhoa.dav@gmail.com
Ms. Kathy
kathyvn@gmail.com

CONTACT

DaThongBao_New
Address: Hoan Kiem, Hanoi,
Vietnam
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